My Mental Illness Story
I thought it was probably time to give my blog readers a bit more of an introduction to my mental illness and were it comes from. When I began this blog, I intended it to be a platform for my writing. I do share my poems and stories, but I’ve gravitated toward writing about mental health. I guess this is my passion. I wasn’t sure what it would be when I started out, but mental health (and women’s rights and safety) has come to the front. So. Here is my introduction. (There are parts I’ve left out for reasons I don’t really want to go into right now. Maybe later.)
I’m rubbish at introductions. I either clam up, or speak incessantly about nothing and freak the other person right out. At least, I get to write this one down.
Where to start? I guess my main mental illness is depression. That’s the one that’s suffocated me since I was a child. Although, today, PTSD is the beast that slashes at my heels. Anxiety became a huge problem after my Dad died in 2007. He had cancer, and I was with him for every appointment, and at the end. When he died, fear took over every aspect of my world. My long-standing, fluctuating OCD kicked in, and I saw germs in everything. I almost drove myself out of my mind with this fear. I still have problems and germs today.
There are lots of things from my childhood that contributed to my mental health issues. I was abused by my grandfather and a couple of other men. My relationship with my parents was complicated. That’s not to say it was all bad. I had some happy times with Mum and Dad and my friends. But the overwhelming sense that I would never be happy just kind of strangled everything else.
I’ve been hospitalised a couple of times on a psych ward. The last time, they persuaded me to have ECT. I didn’t want to, but they (doctors, nurses, NAs) told me I was so ill, it was the only thing that could bring me back from the edge (or some other such nonsense!). I had two sessions that went okay. Just a headache and a little loss of memory afterwards. The third time, the anaesthetic didn’t work properly. I awoke in the middle of it. I couldn’t move because of the muscle relaxant they gave me. There was something in my mouth and nudging my throat, so it felt like I couldn’t breathe. I was terrified! Somehow, I managed to move my little finger on my right hand and one of the NAs noticed and they put me further under. After this, I refused to have any more ECT. But they all worked on me (doctors, nurses, NAs) saying it had never happened before, and it wouldn’t happen again. I gave in. It happened again. After this, I flat out refused to have any more. The result was that I was kicked out of hospital as I clearly didn’t want to get better. The psychiatrist said, “There is nothing more hospital can do for you.” His exact words. I did wonder why keeping me safe from myself wasn’t important, but I was just glad to get away from that terrible place. I swore, as I exited the main doors, I will die before I go back there again.
Dad was diagnosed with oesophageal cancer in June 2005. It devastated Dad, Mum, and me. My Mum was disabled since before I was born. I spent most of my childhood looking after her in one way or another. When Dad was ill, I found myself caring for both of them, taking him to all his appointments, and holding down a full time job. I burned myself out. So when Dad died, I crashed.
This is when I met a man online. Sounds dodgy, no? He lived in Tucson, AZ. I lived in South West England. But we clicked. Instantly. After a few months of emailing and speaking on the phone, then Skyping, he flew over here so we could meet. This year, we will have been married eight years. He is the most wonderful man, and he’s made a big difference to everything. He loves me, you know? Just, loves me. I’ve never had that before.
I thought I would be “all cured” when I met him. That my past would be erased and the darkness brightened. But it would appear that aint gonna happen. My mental illness is part of me. I have to live with it, rather than keep fighting it. Easy to say . . .
Where I’m at right now is dependent upon the day. PTSD, depression, anxiety, agoraphobia. They all stick to me whatever I do. Somedays (rare days), I can shake them off a little and take the dog out on my own. Not far, but on my own, nonetheless. Other days—or weeks—I can’t leave the house at all. Writing helps. But, when I’m ill, I can’t concentrate enough.
The main thing I struggle with is PTSD. I have the voice of my grandfather in my head all the time. He mocks me, shouts at me, instructs me to do things. On good days, I can dial him down so that he’s background noise. Bad days, it’s not possible. I also have a lot of issues with sleep. Going to bed scares me. I have horrible nightmares every single night, and when I wake, sometimes I don’t know whether I’m awake or not. The dreams are real, and he’s in my room. It’s not just in my sleep that I remember. Flashbacks plague me, especially when I’m not so well. It’s like my childhood is stuck on a loop in my head. I don’t know how to make it disappear. I don’t think it will.
All of this affects me physically as well as mentally. My body acts like it’s constantly on alert for some kind of incoming danger. It’s ready to help me to survive the attack, which I know will come. At least, my body knows it will. I know—rationally—that’s not going to happen. Just as I know my grandfather isn’t really in my head or in my bedroom. It doesn’t stop the fear, though.
I think I’ll leave it there for today. I just really wanted to talk about this a little. I wanted to talk about PTSD a little.